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I don’t even remember writing my last post.  I’m still in a ton of pain with my neck and shoulder.  I have my next infusion on Wednesday next week and I see my RA doc then as well, maybe he can give me a shot, I need something.  To be honest, I have been crying most of the day and not really sure why, I’m missing my uncles 70th birthday party because of this crap, in a way it’s a blessing because I really didn’t feel like seeing my aunts and uncles, our family pretending that everything is perfect and that we’re so close.  I get really sick of people pretending.  I have an invisible illness and I myself feel invisible to everyone.  I want to just scream sometimes……do you see me…..do you really see me?  Nobody really sees ME.

 

Among my stillness was a pounding heart.” — Shannon A Thompson

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