I don’t even remember writing my last post.  I’m still in a ton of pain with my neck and shoulder.  I have my next infusion on Wednesday next week and I see my RA doc then as well, maybe he can give me a shot, I need something.  To be honest, I have been crying most of the day and not really sure why, I’m missing my uncles 70th birthday party because of this crap, in a way it’s a blessing because I really didn’t feel like seeing my aunts and uncles, our family pretending that everything is perfect and that we’re so close.  I get really sick of people pretending.  I have an invisible illness and I myself feel invisible to everyone.  I want to just scream sometimes……do you see me… you really see me?  Nobody really sees ME.


Among my stillness was a pounding heart.” — Shannon A Thompson


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s