Family, it’s not for everyone

I have been dealing with an on again off again neck and shoulder pain that has been on again for over a week, it went away when I woke up but when I napped it came right back.  It’s fun like that.  Anyway, My uncles 70th surprise bday party was this past Saturday, I didn’t attend because of the pain and the foggieness of the pain meds.  This morning I received a nice post on my timeline from my sister n law asking how I was, which is not normal.  This afternoon my sister called asking how I was feeling, not normal either, then about 10 minutes after I got off the phone with my sister, my aunt msg’d me on FB asking how I was feeling, not normal either.  I told her I was in pain and that I see my RA dr tomorrow.  then this explodes:

 

yeah rheymatoid arthritis
rheumatoid

I get it in my knee only it acts up when it cold
thats not rheumatoid arthritis, we’ve talked about this before

I’m just going by what my dr. Says
you can’t have RA every now and then, you were never tested, ask to be tested and seen by an RA dr
do you know how it feels to me when you say that?
I have pain on a daily basis because of RA
I am sick all the time because of RA

ok dawn .I’m just saying my dr.says I have it she wouldn’t be lieing about it
kathy, you need to see a specialist to be diagnosed, you can’t just have it it your knee when it’s cold, that is regular arthritis, so when you go see a specialist and he takes 22 viles of blood and says you have RA then we can talk about it

I’m just going what my medical dr. Is saying that’s all
well your dr has no right to diagnose you with something you don’t have, look it up
this shit makes my blood boil

are you saying my medical dr. Is a liar
yes and I’m done talking to you about this

well read it about kathy, you don’t have it
has she put you on medication???
because you have to take medication to slow it down so it doesn’t cripple you
did she tell you that your organs can and will be affected?
did you she tell you that your life expectancy is lower because of RA?
I have been on 7 medications since I was diagnosed over a year ago
what have you been on for it?

She never said none of that to me
it’s all true, look it up and ask her when you see her again

I’m just going by what she said to me
are you sure she didn’t say osteoarthritis

Nope
kathy, whatever, I have this, I know all about it, I have friends who have it
I’m done
no more
you’re making me mad and I don’t need this

Your making me mad to dawn.I don’t want to fight I love you
…..
Then she went on to send me stickers but I just ignored her and went for a walk.  The thing is, we got into this before and I’ve gotten into it with several other family members.  It really makes me wish my mom was here to straighten them out and tell them to leave me alone if they don’t support and/or understand this.  You really can’t educate my aunt about it, she has a 9th grade education and dropped a lot of hits of acid before the age 14.  I love her but I also can’t stand her right now.  I rarely see her but it still affects me, she’s my moms baby sister.  It just goes to show how 2 good things plus 1 bad does not make a right.  You forget about those 2 things because you’re overcome with anger and betrayal.  Why is it so damn hard to get support from the people in your life who are suppose? I’m thankful for the friend I have who completely supports me and all my madness….gracias
 #rheumatoidarthritis #rasucks #rheum #rheumedu
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Author: Dawn Angelique

I'm 47 year old lesbian living in a body that doesn't like me. I have Rheumatoid Arthritis, Fibro, Diabetes, Bipolar, Anxiety Disorder, PTSD, Hypertension, HBP, High Cholesterol. and neurapothy. But through all of this, I'm finally learning to live, even if it's just for moments.

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