Rituxan

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It’s been quite a while since my last post.  I’ve had my ups and downs physically and emotionally but I’m happy to report that after my 4th Rituxan infusion it appears to be helping.

My hands are just not nearly as swollen, hardly at all and when I do things, like typing, it does hurt but I’m not swollen, so knock on wood.

I am having a horrible time with my back, neck and knees, hopefully that will be taken care of soon.  I’m waiting to get into a pain clinic, the one that I was with prior was an absolute horror, so by the advice of my RA doc who recommended the Dr to me, he said to leave and go to a different place..

Okay so this is the most I’ve typed in a while and yeah my hands hurt lol and they are starting to swell up, so I’m going to end this early.

Going to the Mayo Clinic

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My RA doc is sending me to the Mayo on the 12th of Feb.  He is bewildered as to what is going on with me, whatever, I’m more than happy to go to the Rheumatology Clinic at the Mayo Clinic.

One thing though, my dog Tucker is dying, he has stage 4 unspecified metastatic carcinoma.  He has surgery on Jan 8th, they removed a large tumor that was wrapped around his intestines.  It’s in his lympnodes, already spread to his shoulder lympnodes as of 2 days ago they gave him maybe 2 or 3 weeks, he’s been by my side 24/7.  The Mayo is maybe an hours drive from me, maybe a little more.  I prayer that he’s still with me.  He also has fluid build up in his abdomen, this was found 2 days ago as well.  I’m more worried about my baby then myself right now.  He would be 10 in May of this year.  I’ve had him since he was 8 months old.  Easy to say I’m more than depressed, my heart is breaking and my RA is flaring, I feel like I have a million ulcers and have had a million heart attacks.  I’m going to miss my brave boy Tucker

EMG

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I’m having an EMG tomorrow on my right hand/wrist.  Then a full body bone scan to look for I have no idea.

I’ve been pretty stressed out lately, my beautiful wonderful dog Tucker has been diagnosed with stage 4 cancer, so I’m focusing all my attention on him and my health has not been the best because of it but I need to spend as much time with him as I can.483043_4494541174288_779586201_n

Long time no blog

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It’s been quite a while since I last blogged, my laptop was on the fritz.

Apparently the Rituxan is working, I have zero B cells which means, as far as my RA doc says, is good and bad, good: the rituxan is working, it’s blocking the cells that create joint damage, bad: my immune system is even more suppressed, I have been sick for over a month.  At least I know why now.  I’m not sure I like the being sick part, take the good with the bad, I don’t know.

I had my right hand/wrist/forearm mri’d yesterday, I’m hoping that there is nothing wrong with it other than my joint damage from my RA.

My knee’s have been acting up on my lately, all of my joints have, probably because of the freezing cold.

I’ve had insomnia since the beginning of December, my dog was sick, he had been waking me up 3 times a night to go out, my body freaked out I guess, last night was the first night I didn’t wake up, happy about that.

Spread the word

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Hello, I’ve been MIA for a bit, been sick, RA flare, my dog was so close to being put down but he is now doing great.  He has a few things to deal with yet but I’m hoping we will be able to take care of him.  Below is a link to his PetChance page, I know it’s the holiday season and many are spent as it is.  A friend of mine told me about PetChance so I thought I’d give it a shot.  When I reread what I wrote, there are some grammatical errors and typos but oh well, I was in a hurry.

https://www.petchance.org/chances/1554

If anyone who reads this could post this on their FB or twitter or whatever social media you use, Tucker and I appreciate it.  Being on disability and dealing with an emergency like this was not something I can really handle, I didn’t pay my health insurance or car payment.  So far I still have both.

Thanks for reading, Merry Christmas

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Scraping my window

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Last year I didn’t have a car at this time, so yesterday when I went to scrap the ice of my window, I didn’t even think of my hands hurting.  As I pushed the scrap on the car, I felt the pain, then instead of stopping, I continued to scrape down and omg PAIN and write now, it actually really hurts to type, so I’m done.

Ouch

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well, I wrecked my neck, been going to the chiroprator for about a week now, it’s working but it hurts, I know in time it will get better. But I also know I will always have neck problems because I have osteoarthritis and bone spurs on my c5 and c5 vertebae.  yay me.  I’ve been pretty doped up and in pain for a few weeks.  I bang my head on a pipe, that’s what started all of this.  I have been in bed most of the day, I finally moved to my recliner about an hour ago so I could try to sit up.  It hurts but I’m doing it, the pain pills and muscle relaxer do help but not all the time.  I’m incredibly cranky, just found myself yelling at my dog for no damn reason.

On the upside my friend Mara took me out for a late breakfast yesterday and brought me some pain patches along with a lot of other trinkets.  It’s getting close to her leaving, I told her yesterday how important she is to me, that she is such a caring and empathetic person, for all she goes through, she is such a caring person.  I’m really going to miss her.  We didn’t see each other much, mostly talked over text, email or FB but when we did get together it was always fun, she is just a great person to be around.  I am happy for her though, so Mara if you’re reading this, I’m happy for you that you’re moving and have a great place lined up, please please please, find a RA doc when you get there 🙂