Ouch

Standard

well, I wrecked my neck, been going to the chiroprator for about a week now, it’s working but it hurts, I know in time it will get better. But I also know I will always have neck problems because I have osteoarthritis and bone spurs on my c5 and c5 vertebae.  yay me.  I’ve been pretty doped up and in pain for a few weeks.  I bang my head on a pipe, that’s what started all of this.  I have been in bed most of the day, I finally moved to my recliner about an hour ago so I could try to sit up.  It hurts but I’m doing it, the pain pills and muscle relaxer do help but not all the time.  I’m incredibly cranky, just found myself yelling at my dog for no damn reason.

On the upside my friend Mara took me out for a late breakfast yesterday and brought me some pain patches along with a lot of other trinkets.  It’s getting close to her leaving, I told her yesterday how important she is to me, that she is such a caring and empathetic person, for all she goes through, she is such a caring person.  I’m really going to miss her.  We didn’t see each other much, mostly talked over text, email or FB but when we did get together it was always fun, she is just a great person to be around.  I am happy for her though, so Mara if you’re reading this, I’m happy for you that you’re moving and have a great place lined up, please please please, find a RA doc when you get there 🙂

It’s been a while

Standard

I’ve been away from my computer.  Not much has changed with my RA except that it’s getting worse lol My knee and my hands are just not liking me too much.

This cold weather is not helping at all either, it’s like 10 degrees with a windchill of like -14.  Yes it sucks.  I did manage to get a concussion and whiplash by banging my head on a pipe in the basement, I ran right into that sucker.  Apparently I have post concussion syndrome, I go see my NP tomorrow, she’s just going to tell me I need PT.  I’ve had trouble with my neck in the past, it took 6 months of PT to fix it, I have a neck pillow even, usually when my neck hurts, after a nights sleep with that pillow I am fine, but this is not the case.

My friend hasn’t moved yet, not sure when she is moving, I haven’t talked to her in a few days, I think, my memory sucks right now.

Losing a friend to a warmer climate

Standard

Someone I met through FB RA group is moving away to California at the beginning of the month.  While I’m happy for her and know she needs to do it for her health, I am extremely bummed that she is leaving.  She said well we talk most online anyway but that’s not the point, she’s leaving the state, she has been there for me so many times when I needed someone, now I will having nobody.  Quite frankly I’m upset about it.  Plus she’s been busy with seeing other people before she leaves and I just don’t think I’ll end up seeing her before she leaves, well wait, I’ll will because she’s giving me her bed.  But I just want to hang out and talk, I’m really going to miss her, she is the only one who gets me because of the RA.  She’s a great person and I’m really going to miss her presence in my life.

Root Canal Imflamed

Standard

So anyone with RA ever have an inflamed root canal?  Not sure it it’s related but I got it lol  My mom is in heaven saying to herself, only you Dawn, only you.

Not a good pain day

Standard

I’m in pain everyday but today, even my hip joints hurt, it hurts to type so this will be short, I hope this Rituxan kicks in quickly because I really am so sick of this shit.  I’m a big baby right now, so tired of the pain.

General Status

Standard

I’ve been having a fever everyday for the past week and a half, I’m not sure if it’s because of the infusion or just general RA crap.  It’s always hard for me to tell with anything if it’s RA related, I guess most of it is, I also have fibromyalga so I know some of the pain I get is from that but the not well feeling and the joint pain and other things I know are from the RA.

I use a sleeve thingy for my knee now, I don’t wear it all the time because I don’t want to depend on it, I went about a week without it and my knee started giving out on me again, so I’m back to use it.  It does give me relief and I’m so thankful for that.

I don’t see my RA doc until the end of the month, then we’ll find out from the blood work if the infusion is working.  I don’t notice anything getting even a little better but I’m going to stay neutral with my feelings on it.

Second Infusion

Standard

Well it was only suppose to be 3 hours this time…..they said…….not gonna happen when you’re talking about my body and how it dislikes all medicine put in it.  I had a reaction, heavy chest, lump in throat, had to stop the medication,, give me benedryl in the iv, twice, then steroids, then restart at a very slow pace.  I got there at 9:45 and left at 4:00, there hours, it was a long three hours.

Feeling pretty crappy today, can’t talk, not sure what that’s about but it’s been happening more frequent than not, I’ve heard there are joints in the throat, maybe they are inflamed.

My blood work didn’t change from the first infusion of this drug, I go see my RA doc the end of October to see if it’s helping, not sure what he’ll do if it’s not.  I’m indifferent about it, I just have no confidence in the medication used for RA, I’ve found no relief what so ever.   We shall see…………..